Tuesday, September 16, 2008

Tall Dave in the media Friday

For those of you who don't know Dave, he is one of my very closest friends. Dave lives in Milwaukee and we dated for a while. This is a picture from back then, when he was visiting me in Kansas. I am 6 feet tall, and Dave is 7 foot 4 inches tall.
Dave is visiting KC this weekend with the Milwaukee Tall Club, which is joining forces with the Kansas City Skyliners to have a fun weekend gathering. Tall clubs promote awareness of the issues and challenges of being very tall, and also of genetic disorders which are characterized by tallness. In my past involvement with the Milwaukee Tall Club, they have raised money through auctions and events to support research of Marfan Syndrome. There are many identifiable characteristics of Marfan Syndrome. But the problem is most people have never heard of it.
There have been many advances in surgical technology and now a promising new drug that can be given to younger Marfan Patients. Please take the time to visit http://www.marfan.org/ and learn about this potentially deady genetic disorder.
Dave will be interviewed and broadcast Friday. These are the times and channels:
WDAF Fox 4 at 8:20 a.m.
KMBC-TV the local ABC channel at 5:00, 6:00 and 10:00 p.m on Friday evening.
Please tune in. He will be talking about Marfan. For the record, Dave does not have Marfan, but a similar connective tissue disorder.

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